Our daughter Nicola was diagnosed with an MFM condition at two. Despite the continuous treatments and outstanding efforts, there was no cure and she succumbed 6 months later. During these intense 6 months Nicola brought out the best in everyone around her.
The site is dedicated to her and to all children affected by MFM. It is also recognition for the efforts and of family and friends and the dedication of the Hospital for SickKids, continuous priceless generosity of blood and marrow donors, as well as support for the families affected by MFM.
Judi & Carmine Tullio
YellowBaloon’s mission is to support research to find a cure for MFM. We accomplish this by:
- Raising and develop greater awareness of MFM
- Fundraising for the research to cure the genetic form of MFM
- Supporting SickKids’ MFM program
- Supporting the MFM community of patients, parents, associations and caregivers
MFM Program at SickKids
YellowBalloon is closely affiliated with the Comprehensive Childhood Marrow Failure and Myelodysplasia Program (CCMFMP) at SickKids. The goals of this program are to promote and sustain excellence in clinical care, research and education in the field of bone marrow failure and myelodysplasia. The address is: www.sickkids.ca/mfmp
MFM Associations in Canada
YellowBalloon is also affiliated with other MFM associations in Canada that are providing critical support for patients and their families.
Aplastic Anemia & Myelodysplasia Association of Canada
Neutropenia Support Association
Schwachman-Diamond Syndrome Canada
Barth Syndrome Foundation of Canada