2009 Marrow Failure and Myelodysplasia Conference

Saturday March 28, 2009 - from 9 a.m. to 4:30 p.m.

The Hospital for Sick Children
Hollywood Theatre, Elm Wing, 1st Floor
555 University Ave., Toronto



We are pleased to invite you to a day-long, interactive health-care meeting about bone marrow failure. This meeting is for patients with bone marrow failure disorders and myelodysplastic syndromes (MDS), patients’ families, as well as for health-care workers and others who are interested in learning more about bone marrow failure and contributing to this exciting event.
 

This year’s conference will focus on:

  • Characteristics and complications of bone marrow failure disorders and myelodysplastic syndromes
  • Overview of the treatment options and the need for regular follow-up
  • Transfer of patients to adult haematologists
  • Challenges and future directions from the perspective of the patients/families and the medical team
  • Raising patients’ awareness about the existence of the support groups
  • The activities of the Marrow Failure and Myelodysplasia Program at SickKids
  • Networking opportunities for families
 

Speakers:

  • Dr Yigal Dror, SickKids Hospital, Toronto
  • Dr Conrad Fernandez, IWK, Halifax
  • Dr Adam Gassas, SickKids Hospital, Toronto
  • Dr Jeff Lipton, Princess Margaret Hospital, Toronto
  • Dr Steve Meyn, SickKids Hospital, Toronto
  • Dr Isaac Odame, SickKids Hospital, Toronto
  • Pat Canning, Marrow Failure and Myelodysplasia Nurse, SickKids, Toronto
  • Diana Cottingham, Social Worker, SickKids, Toronto
  • Nancy Pringle, Nurse, Princess Margaret Hospital, Toronto
 

Bone marrow failure and MDS disorders include:

  • Aplastic anemia
  • Fanconi anemia
  • Shwachman-Diamond syndrome
  • Congenital amegakaryocytic thrombocytopenia
  • Dyskeratosis congenita
  • Congenital hair hypoplasia
  • Pearson disease
  • Diamond Blackfan anemia
  • Sideroblastic anemia
  • Kostmann neutropenia
  • Cyclic neutropenia
  • Barth’s syndrome
  • Benign familial neutropenia
  • Glycogen storage disease type Ib
  • Myelokathexis
  • Thrombocytopenia with absent radii
  • Familial non-syndromic thrombocytopenia
  • Dyserythropoietic anemia with thrombocytopenia
  • Familial thrombocytopenia with propensity for leukemia
  • Myelodysplastic syndromes
Children are welcome. Children’s activities will be hosted by the Camp Quality volunteers

For details and to RSVP please contact:

Philippa McCaffrey, Marrow Failure and Myelodysplasia Program
The Hospital for Sick Children, Toronto
416-813-8886 or Philippa.McCaffrey@SickKids.ca
Please note the number of participants is limited by the conference facilities, therefore we recommend early registration.
 

Sponsors:


SickKids Foundation, GeneDx, Novartis 

Organizing Committee:

Dr. Yigal Dror (MFM Program, SickKids), Cindy Anthony (Camp Quality), Caroline Laughlin (AAMAC), Lorne Shelson (FAC), Lynn Elwood (BSC), Lorna Stevens (NSAI), Heather Norton (SDSC), Judi and Carmine Tullio, Tijana Muratovic