2011 MFM Symposium

Marrow Failure and Myelodysplasia Symposium
The Hospital For Sick Children, 555 University Ave., Toronto
Hollywood Theatre (Main Auditorium) 1st Floor
Saturday, April 9, 2011


8:00-8:30 Registration  
8:30-8:35 Welcome and presentation of the agenda Mr. Carmine Tullio
8:40-9:00 Patient Family Story TBA
9:00-9:30 Aplastic anemia, marrow failure and myelodysplastic syndromes Where do we stand in 2011? Dr. Yigal Dror
9:30-10:00 Inherited bone marrow failure syndromes in Canada – updates from the Canadian Inherited Marrow Failure Registry TBA
10:00-10:30 New directions to understand Diamond-Blackfan Anemia Dr. Chet Tailor
10:30-10:45 Break  
10:45–10:50 Patient Family Story TBA
10:50-11:30 Cancer risk in severe congenital Neutropenia, Fanconi Anemia and other bone marrow failure syndromes Dr. Seth Corey
11:30-11:50 The mechanism of bone marrow failure in Shwachman-Diamond syndrome Yigal Dror
11:50-12:15 Novel technologies to study bone marrow failure syndromes Santhosh Dhanraj & Shireen Kahai
12:15-12:30 General Q&A Moderated by Caroline Laughlin
12:30-1:30 Lunch  
1:30-1:35 Patient Family Story TBA
1:35-2:05 Marrow Failure and Myelodysplasia from the general perspective of Pediatric haematology & oncology Dr. Jim Whitlock
2:05-2:40 Comprehensive care for complex disorders Julie Watson
2:40-3:10 Adult Programs and Transition Dr. Jeff Lipton
3:10-3:25 Break  
3:25-3:55 Genetic Counselling for Inherited MFM Harriet Druker
3:55-4:25 Workshop: Patient and Family outpatient Communication and Networking Teenager/young adult patient representativeParent representative, Lynda Morrison Wellspring, PMH Caring Voices
4:25-4:40 Presentation by the children  
4:40-4:55 Closing remarks Dr. Yigal Dror
Note: The last 5-10 minutes of each session will be dedicated to interactive discussion with the audience.

Kids Agenda

  Kids / Teens Breakout  
10:00-10:30 Get-to-know-you Activities
- Human Map Game / Human Treasure Hunt
Camp Quality Volunteers
10:30-10:45 Snack Break  
10:45-11:15 Activities
- Interactive Games
Camp Quality Volunteers
11:15–12:00 Questions to the Doctor Dr. Yigal Dror
12:00-1:00 Lunch  
1:00–2:30 Activities – Crafts
- Learn to draw – pre-teens
- Soap carving / Celtic Know art
Camp Quality Volunteers
2:30–3:00 Teens – Transitioning Diana Cottingham
3:00–3:30 Preparing for Presentation to Parents
- FunnyTalents and Interactive Songs
Camp Quality Volunteers
3:30-4:05 Snack Break  
4:05-4:30 Presentation for Parents Camp Quality Volunteers & Kids