2009 Marrow Failure and Myelodysplasia Conference

Saturday March 28, 2009 - from 9 a.m. to 4:30 p.m.

The Hospital for Sick Children
Hollywood Theatre, Elm Wing, 1st Floor
555 University Ave., Toronto

We are pleased to invite you to a day-long, interactive health-care meeting about bone marrow failure. This meeting is for patients with bone marrow failure disorders and myelodysplastic syndromes (MDS), patients’ families, as well as for health-care workers and others who are interested in learning more about bone marrow failure and contributing to this exciting event.
 

This year’s conference will focus on:

• Characteristics and complications of bone marrow failure disorders and myelodysplastic syndromes
• Overview of the treatment options and the need for regular follow-up
• Transfer of patients to adult haematologists
• Challenges and future directions from the perspective of the patients/families and the medical team
• Raising patients’ awareness about the existence of the support groups
• The activities of the Marrow Failure and Myelodysplasia Program at SickKids
• Networking opportunities for families

 

Speakers:

• Dr Yigal Dror, SickKids Hospital, Toronto
• Dr Conrad Fernandez, IWK, Halifax
• Dr Adam Gassas, SickKids Hospital, Toronto
• Dr Jeff Lipton, Princess Margaret Hospital, Toronto
• Dr Steve Meyn, SickKids Hospital, Toronto
• Dr Isaac Odame, SickKids Hospital, Toronto
• Pat Canning, Marrow Failure and Myelodysplasia Nurse, SickKids, Toronto
• Diana Cottingham, Social Worker, SickKids, Toronto
• Nancy Pringle, Nurse, Princess Margaret Hospital, Toronto

 

Bone marrow failure and MDS disorders include:

• Aplastic anemia
• Fanconi anemia
• Shwachman-Diamond syndrome
• Congenital amegakaryocytic thrombocytopenia
• Dyskeratosis congenita
• Congenital hair hypoplasia
• Pearson disease
• Diamond Blackfan anemia
• Sideroblastic anemia
• Kostmann neutropenia
• Cyclic neutropenia
• Barth’s syndrome
• Benign familial neutropenia
• Glycogen storage disease type Ib
• Myelokathexis
• Thrombocytopenia with absent radii
• Familial non-syndromic thrombocytopenia
• Dyserythropoietic anemia with thrombocytopenia
• Familial thrombocytopenia with propensity for leukemia
• Myelodysplastic syndromes

Children are welcome. Children’s activities will be hosted by the Camp Quality volunteers

For details and to RSVP please contact:

Philippa McCaffrey, Marrow Failure and Myelodysplasia Program
The Hospital for Sick Children, Toronto
416-813-8886 or [email protected]
Please note the number of participants is limited by the conference facilities, therefore we recommend early registration.
 

Sponsors:

SickKids Foundation, GeneDx, Novartis 

Organizing Committee:

Dr. Yigal Dror (MFM Program, SickKids), Cindy Anthony (Camp Quality), Caroline Laughlin (AAMAC), Lorne Shelson (FAC), Lynn Elwood (BSC), Lorna Stevens (NSAI), Heather Norton (SDSC), Judi and Carmine Tullio, Tijana Muratovic