| 8:00-8:30 |
Registration |
|
| |
| 8:30-8:35 |
Welcome and presentation of the agenda |
Mr. Carmine Tullio |
| |
| 8:40-9:00 |
Patient Family Story |
TBA |
| |
| 9:00-9:30 |
Aplastic anemia, marrow failure and myelodysplastic syndromes Where do we stand in 2011? |
Dr. Yigal Dror |
| |
| 9:30-10:00 |
Inherited bone marrow failure syndromes in Canada – updates from the Canadian Inherited Marrow Failure Registry |
TBA |
| |
| 10:00-10:30 |
New directions to understand Diamond-Blackfan Anemia |
Dr. Chet Tailor |
| |
| 10:30-10:45 |
Break |
|
| |
| 10:45–10:50 |
Patient Family Story |
TBA |
| |
| 10:50-11:30 |
Cancer risk in severe congenital Neutropenia, Fanconi Anemia and other bone marrow failure syndromes |
Dr. Seth Corey |
| |
| 11:30-11:50 |
The mechanism of bone marrow failure in Shwachman-Diamond syndrome |
Yigal Dror |
| |
| 11:50-12:15 |
Novel technologies to study bone marrow failure syndromes |
Santhosh Dhanraj & Shireen Kahai |
| |
| 12:15-12:30 |
General Q&A |
Moderated by Caroline Laughlin |
| |
| 12:30-1:30 |
Lunch |
|
| |
| 1:30-1:35 |
Patient Family Story |
TBA |
| |
| 1:35-2:05 |
Marrow Failure and Myelodysplasia from the general perspective of Pediatric haematology & oncology |
Dr. Jim Whitlock |
| |
| 2:05-2:40 |
Comprehensive care for complex disorders |
Julie Watson |
| |
| 2:40-3:10 |
Adult Programs and Transition |
Dr. Jeff Lipton |
| |
| 3:10-3:25 |
Break |
|
| |
| 3:25-3:55 |
Genetic Counselling for Inherited MFM |
Harriet Druker |
| |
| 3:55-4:25 |
Workshop: Patient and Family outpatient Communication and Networking |
Teenager/young adult patient representativeParent representative, Lynda Morrison Wellspring, PMH Caring Voices |
| |
| 4:25-4:40 |
Presentation by the children |
|
| |
| 4:40-4:55 |
Closing remarks |
Dr. Yigal Dror |
| |
| Note: The last 5-10 minutes of each session will be dedicated to interactive discussion with the audience. |